DISCLAIMER The following is a staff memorandum or other working document prepared for the members of the Advisory Committee on Human Radiation Experiments. It should not be construed as representing the final conclusions of fact or interpretation of the issues. All staff memoranda are subject to revision based on further information and analysis. For conclusions and recommendations of the Advisory Committee, readers are advised to consult the Final Report to be published in 1995. MEMORANDUM To: Advisory Committee on Human Radiation Experiments From: Advisory Committee Staff Date: September 1, 1994 Re: Staff Memorandum: Information System Development/Database Development and Capabilities ACHRE is involved in a complex research and investigation project that requires the analysis and understanding of over fifty years of the interactions among public policy, government programs, scientific and medical research, and moral attitudes and expectations, in a context in which the public perception of appropriate and inappropriate and of right and wrong in all of these areas has changed several times. Despite the complexity of this information, the importance of the issues involved to individual American citizens requires that ACHRE achieve a synthesis of understanding and a clarity of analysis that can be understood by the public and effectively translated into governmental action. To perform this daunting task, ACHRE requires significant technical support to aid it in coordinating information of different types and in communicating that information to the public. The technology selected to provide this support includes (1) telecommunications facilities that include electronic mail and Internet access, (2) software that supports shared databases of textual information, (3) electronic discussion groups that support the research work of staff teams, and (4) facilities that allow public access to much of the information collected or developed by ACHRE. The planning and implementation process was described at the Committee's second June meeting. Since that time, substantial progress has been made towards full implementation of the plan. NETWORK The ACHRE computer network was installed in early August, and currently connects 38 workstations. The network provides access to Lotus Notes, which is being used for electronic mail within the staff offices and various database applications (described below). We are working to obtain full Internet access for the ACHRE network in September, so that staff and committee members may correspond by electronic mail. Committee members who are interested in having direct access to ACHRE databases should request a copy of the hardware and software requirements. ELECTRONIC INFORMATION SERVICES Established Databases In addition to the standard mail and help databases, ACHRE staff members now have access to the following databases: All Staff Discussion is an open forum for comments and contributions on any topic; 1 Technology Corner is a discussion of various hardware, software and telecommunications issues managed by ACHRE's senior technology consultant; Document Collection contains lists and descriptions of all documents received by the ACHRE staff, and can be manipulated to show subsets of the collection of particular interest to the user. Information services staff use the database to provide collection and document control; research staff use the database as a catalog of archival materials. Publications Collection serves as a catalog of published research materials held by ACHRE. Staff and committee members can also use the database to request published information. ACHRE Indexes contains standard information sets developed by ACHRE staff. Available information includes lists of subject terms, individuals of research interest, isotope formulas, acronyms, and other general information, and supports look-up tables for other databases, so that their use can be facilitated. Experiment Index contains information in a standard format for each experiment identified as of interest to ACHRE, classified according to the agreed themes and emphases in ACHRE's research. This index can be sorted according to various keywords, themes, types of experiment, etc., in order to allow categories and characteristics of experiments to be selected. Database Development Several databases are being developed. One database will include a timeline of incidents, people, places and things of interest to ACHRE in a single chronology. Another will include news articles and broadcasts related to ACHRE or its research interests. Others will aid specific research teams in recording, developing and organizing information related to their projects. Additional databases will be constructed as required or requested. Online Services Staff still have direct access only to Lexis/Nexis; some second hand access is available through the DOE Library. Requests for access to Medline and other specific services are still outstanding; eventually we hope to have direct access through Dialog. Continuing efforts are being made to address this problem. DOCUMENT COLLECTIONS Records The Archival Collection now contains c. 125 cubic feet of records. Approximately 40% of this volume has been reviewed at the document level in order to identify significant documents, which are then described and indexed in detail. Approximately another 10 to 20% of this volume has been analyzed by staff members for their specific research projects but has not been evaluated for broader interest. The necessary goal is review and evaluation of all documents. 2 The structure and handling of ACHRE's own records has been addressed by the issuing of general guidelines for records retention and the identification of lead staff members whose responsibility it is to see that specific categories of records are preserved and organized. Publications ACHRE staff have made several hundred individual requests for published information, most of which have been sent to the DOE Library for fulfillment. Among these requests are orders for publications related to radiation exposure standards, articles on various ethical issues, and transcripts of Congressional hearings over a 46 year period. Several collections of documents have been assembled, including runs of minutes of important committees and several sets of agency histories. DEVELOPING SERVICES A professional librarian will join the ACHRE staff in September. Among her first tasks will be to develop, in cooperation with the director of information services and members of the research staff, a plan for expanding and improving online and other bibliographic services. At least two new projects have already been identified: (1) a coordinated set of online and other searches that results in a formal, certified survey of publications related to topics of interest to ACHRE, particularly reports of experiments and related research; and (2) research to identify the location of archival collections related to ACHRE research interests. The availability of the librarian will also allow better coordination and control of the various print documents now owned or on long-term loan to ACHRE. Following establishment of ACHRE's Internet access, planning work will begin for two major applications: (1) the creation of optical records of important ACHRE documents, both to provide better access for staff and for the public, and (2) the creation of a gopher server to provide public access to the information contained in ACHRE's databases and document collections. A gopher server is an Internet location that holds information that can be selected and downloaded by individuals. If possible, a newsgroup or listserv will be established in conjunction with the gopher. Newsgroups and listservs are online discussion forums on specific topics. PUBLIC ACCESS Public access to some ACHRE information is now available in the ACHRE offices. Among the items available are the agenda and minutes for all ACHRE meetings, including all supporting documentation developed for or used by members of the committee for those meetings, or otherwise submitted for its information and consideration; assembled collections of documents, such as the minutes of meetings of agency committees or agency histories; 3 and descriptions of the collections of records deposited by the agencies, together with lists of significant documents identified in those collections. Additional information is available only in electronic formats. Proposals for public access to this information are included in a separate memorandum. 4